I sat holding Kia’s hand as Dr. Hughes, her neurologist, and Dr. Agapov, the geneticist talked about Kia’s possible treatment plan. With her being pregnant a lot of the testing needed to wait, even with the bloodwork since her body chemistry had changed because of the pregnancy. There was a lot of technical talk and I was wishing now I’d taken Gi-Gi up on her offer to come with us. She’d be able to break everything down to understandable words. My ears perked up when I heard the word surgery.
